Donations to help with Riley's medical expenses and help find a cure for Canavan can be sent to:

% Hope For Riley
Maple City Savings and Loan
145 Main Street
Hornell, NY 14843


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All funds go to help with Riley's medical expenses and Canavan's Research

A Smile Just For You


My name is Riley and I love to smile.  I have Canavan's Disease but that doesn't stop me from telling my Mom and Dad how much I love them.  All they have to do is look into my eyes and see my smile and I tell them just how wonderful they are and how much I love them.

Thank You

A huge thank you to the Allegany County Sheriff's Tactical Weapons Team for having a special fund raiser for me at their Sportsmen's Banquet.  To all the members of the team and all who attended last night I send you a huge smile, a big thank you, and if I could I would give each of you a hug.  --Riley

2011 Jacob's Cure Canavan Research Summit & Family Conference

Click here to check out the You Tube Video from the conference and learn how these incredible scientists are helping these wonderful children.


Date: October 8th, 2011

Time: 1:00 - 6:00 p.m.

Place:  Canisteo American Legion

COST:  $10 per person (pre-sale tickets available)
Includes spaghetti dinner and refreshment as well as enter you into a drawing for a 32-inch TV (must be present to win).  Chinese auction, raffles, door prizes of goods and services from the Wellsville and Hornell areas.  Also includes some sports/entertainment memorabilia.  Bring the whole family for a great day and support a great cause . . . RILEY!



Celebrating My First Birthday

It's official I'm a year old now.  Mom, Dad, Grandma Jen, Grandpa Dave, Grandpa and Grandma Rosemier and lots of my family gave me this wonderful party  It was a most wonderful day.  The cake was awesome and the frosting looked as good on me as it tasted. 

In The News

Recently my mom and I were in the news.  Check out the article in the Hornell Evening Tribune by clicking here

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Help Riley

Hope for Riley bracelets are here!

Help Riley with medical treatments and support Canavan research by purchasing a Hope for Riley bracelet.  Watch for upcoming events where we will be selling these.